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IMPROVING HEALTH FOR VERY PRETERM CHILDREN IN EUROPE
  • 20190920 164638  

    Maastricht Workshop

    We took part in the 3rd Congress of joint European Neonatal Societies (jENS) in Maastricht, 
    the Netherlands (17th - 21th September 2019). 
    Several presentations and discussions around neonatal health and very preterm births. 


    Read more about the jENS here
  • European Commission logo  

    Results in Brief

    Read the article "Results in Brief" (clic on the link) about the SHIPS project on the European Union research website (CORDIS) in six languages. 


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    Recent Publications

    SPECIALIST HEALTH CARE SERVICES USE
    Specialist service use by children born very preterm varies widely across Europe.

    DURATION IN HOSPITAL STAY FOR VERY PRETERM INFANTS
    Average duration of hospitalization in the neonatal unit for very preterm infants differs by as much as two weeks between regions in Europe.

    Read more here




  • Group picture FrankfurtWe are participating in RECAP

    We are participating in the RECAP (Research on Children and Adults born Preterm) project to establish a platform for 20 European cohorts of very preterm children and adults. The RECAP last General Assembly Meeting: 22-24 January 2019 was organized in Rome. 

    Read more about RECAP
     
    recap-preterm.eu
    RECAP Logo RGB1487078699

  • Thank you for parents 2019Thank you to all parents who supported the SHIPS project

    Thank you messages were posted on social media by EFCNI to thank parents participating in the SHIPS project for their invaluable contribution to this research study.  By studying children's health and development and parents' experiences with health services, the SHIPS project aims to improve the quality and effectiveness of follow-up care.

    Facebook: https://www.facebook.com/efcni/photos/a.167596713325378/2210430429041986/?type=3&theater
    Twitter:https://twitter.com/EFCNIwecare/status/1138334509294903296
    LinkedIn: https://www.linkedin.com/feed/update/urn:li:activity:6544100662274215938
    Instagram: https://www.instagram.com/p/Byj1cd2iQRg/


  • PRISM e learning toolNew preterm birth e-learning resource for education professionals

    Professor Samantha Johnson and the PRISM Study team developed a new free e-learning resource for teachers to help explain the impact that being born preterm can have on a child’s development and learning, as well as practical ways teachers can support them at school. The resource was co-designed with stakeholders, inclding teachers, educational psychologists, parents of children born preterm, and young adults who were born preterm themselves. This tool is now free to schools and teachers! 


    Read more about the e-learning tool
      
    www.pretermbirth.info

Screening to Improve Health in Very Preterm Infants in Europe (SHIPS) is a European research project about follow-up programmes for children born preterm. The project builds on the EPICE cohort which includes 6792 infants born before the 32nd week of gestation in 2011 and 2012 in 19 regions in 11 European countries. These children are now five years of age and their families will be invited to participate in the SHIPS project.

The SHIPS and EPICE projects study the use of evidence-based health care, follow-up screening and prevention programmes for very preterm infants. Evidence-based care means that clinicians and policy makers use the best scientific evidence to make decisions about medical procedures and health care services.

Very preterm infants face higher risks of health and developmental problems than children born at term. Follow-up programmes aim to identify any problems early in order to enable interventions and optimal management of health care needs. The SHIPS project seeks to create new knowledge about the effectiveness of these programmes and to use these results to develop guidelines for follow-up. The over-riding aim is to improve the health and quality of life of children born very preterm.

Information will be collected on the children’s health, healthcare use and quality of life as well as on the coverage, content and costs of the follow-up and screening programmes in the participating regions. This will be done as part of four studies which include a questionnaire filled in by parents, in-depth assessments of children’s development by clinical psychologists, personal interviews with selected parents about their experiences of follow-up, and structured questionnaires sent to directors of follow-up programmes in the participating regions.

The projects are carried out by a consortium including clinicians, researchers and parent representatives from the 11 participating countries.