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IMPROVING HEALTH FOR VERY PRETERM CHILDREN IN EUROPE
  • This short video describes the RECAP Data Plateform which allows researchers to find and use data from participating very preterm (VPT) and very low birth weight (VLBW) cohorts to answer research questions using novel tools and methodologies. 


  • Follow up at five years of age

    Routine follow up at five years of age of children born very preterm varies by country of birth in Europe, as described in this publication from the SHIPS project:  

    Follow-up after very preterm birth in Europe. Seppänen AV, Draper ES, Petrou S, Barros H, Andronis L, Kim SW, Maier RF, Pedersen P, Gadzinowski J, Lebeer J, Ådén U, Toome L, van Heijst AFJ, Cuttini M, Zeitlin J; SHIPS Research Group.Arch Dis Child Fetal Neonatal Ed. 2021 Feb 10:fetalneonatal-2020-320823. doi: 10.1136/archdischild-2020-320823. Online ahead of print.PMID: 33568495 No abstract available.
        
     
  • flyer picture for website  

    RECAP preterm Winter School

    Part of RECAP preterm (Research on Children and Adults born Preterm), the SHIPS/EPICE project encourages the next Winter School. Primarily aimed at researchers who are not already involved in RECAP preterm, the Winter School will be a 5-day workshop (29 November - 3 December 2020, Castel Fürstenried, Munich, Germany) to learn about the platform and constitute future collaborative research projects that can be carried out using the RECAP preterm data. 


    Read more about it here:     Flyer     Website
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    Recent Publications
    See recent studies on postnatal growth in very preterm infants and how to manage loss-to-follow-up when analysing data from very preterm cohorts

    Strategies for assessing the impact of loss to follow-up on estimates of neurodevelopmental impairment in a very preterm cohort at 2 years of age.

    Piedvache A, van Buuren S, Barros H, Ribeiro AI, Draper E, Zeitlin J; EPICE Research group.BMC Med Res Methodol. 2021 Jun 6;21(1):118. doi: 10.1186/s12874-021-01264-3.

    Variation in very preterm extrauterine growth in a European multicountry cohort.
    El Rafei R, Jarreau PH, Norman M, Maier RF, Barros H, Reempts PV, Pedersen P, Cuttini M, Zeitlin J; EPICE Research Group.Arch Dis Child Fetal Neonatal Ed. 2021 May;106(3):316-323. doi: 10.1136/archdischild-2020-319946. Epub 2020 Dec 2.


  • Thank you for parents 2019Thank you to all parents who supported the SHIPS project

    Thank you messages were posted on social media by EFCNI to thank parents participating in the SHIPS project for their invaluable contribution to this research study.  By studying children's health and development and parents' experiences with health services, the SHIPS project aims to improve the quality and effectiveness of follow-up care.

    Facebook: https://www.facebook.com/efcni/photos/a.167596713325378/2210430429041986/?type=3&theater
    Twitter:https://twitter.com/EFCNIwecare/status/1138334509294903296
    LinkedIn: https://www.linkedin.com/feed/update/urn:li:activity:6544100662274215938
    Instagram: https://www.instagram.com/p/Byj1cd2iQRg/


  • PRISM e learning toolPreterm birth e-learning resource for education professionals

    Professor Samantha Johnson and the PRISM Study team developed a new free e-learning resource for teachers to help explain the impact that being born preterm can have on a child’s development and learning, as well as practical ways teachers can support them at school. The resource was co-designed with stakeholders, inclding teachers, educational psychologists, parents of children born preterm, and young adults who were born preterm themselves. This tool is now free to schools and teachers! 


    Read more about the e-learning tool
      
    www.pretermbirth.info

Screening to Improve Health in Very Preterm Infants in Europe (SHIPS) is a European research project about follow-up programmes for children born preterm. The project builds on the EPICE cohort which includes 6792 infants born before the 32nd week of gestation in 2011 and 2012 in 19 regions in 11 European countries. These children are now five years of age and their families will be invited to participate in the SHIPS project.

The SHIPS and EPICE projects study the use of evidence-based health care, follow-up screening and prevention programmes for very preterm infants. Evidence-based care means that clinicians and policy makers use the best scientific evidence to make decisions about medical procedures and health care services.

Very preterm infants face higher risks of health and developmental problems than children born at term. Follow-up programmes aim to identify any problems early in order to enable interventions and optimal management of health care needs. The SHIPS project seeks to create new knowledge about the effectiveness of these programmes and to use these results to develop guidelines for follow-up. The over-riding aim is to improve the health and quality of life of children born very preterm.

Information will be collected on the children’s health, healthcare use and quality of life as well as on the coverage, content and costs of the follow-up and screening programmes in the participating regions. This will be done as part of four studies which include a questionnaire filled in by parents, in-depth assessments of children’s development by clinical psychologists, personal interviews with selected parents about their experiences of follow-up, and structured questionnaires sent to directors of follow-up programmes in the participating regions.

The projects are carried out by a consortium including clinicians, researchers and parent representatives from the 11 participating countries.